STANDING COULD KILL HER: This is how her life looks like!
Claudia Pauel (19 yrs) felt an intense pain in the pelvis area and she was diagnosed with a rare syndrome of postural orthostatic tachycardia. This disease with a complicated name means that, Claudia is somehow allergic to standing on the feet.
Claudia firstly visited her gynecologist, who diagnosed her endometriosis. This disease, which covers the internal membrane of the uterus and causes growth of a tissue outside it, causes strong pains and in time could lead to infertility.
Although there are many drugs and therapies, Claudia belongs in the 20% of the women where the drugs have no effects.
“I had surgeries and nothing changed” – says Claudia. However, the biggest problem of Claudia is because of the syndrome that she has since her birth, and because her heart beats multiple and it accelerates when she’s standing on her feet. It is about a rare disruption in her nervous system where she falls unconscious if she stands on feet for a long time.
“Shortly, I’m allergic to standing. It affects a lot on my daily life, because I should use a wheelchair if I go outside. During the day I usually lie, because sitting upright could be hard. When I wake up in the morning, my pulse is around 150 and it could be even bigger, until the drugs don’t start acting” – retells Claudia.
As she says, she could walk only to the kitchen and back, without falling unconscious, and sometimes she even has to crawl.
And, that’s not everything. This girl has one more diagnosis – Gastroparesis. It means that that her stomach couldn’t empty well of food and because of that she feeds herself using a tube.
That’s why, Caudia decided to start a blog where she will explain in details who her life looks like with a chronic disease with her 19 years.
“I receive messages from people around the world, who suffer from the same disease, but they are afraid to say it. I’m pretty shy, but I’ve started a blog because I hope that somehow I could help the other people” – says genuinely Claudia.